Starting...

We just got the first call. They have finished hooking Tehilla up and have given her the anesthesia. She is now starting surgery.

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Surgery has started

They just took her in at 8:40. Ron went in, until the anesthesia kicked in. 

Now we have about 6 hours. 

Norwood Surgery

Tehilla is having her first surgery, the Norwood, tomorrow morning. She will be taken for surgery around 7/8 am.

It will take them about 2 hours to hook her up to all the different tubes, catheters, wires and everything else. Then they will begin surgery.

The surgery takes about 4 hours. We will be getting hourly updates, which I will post on here. 

This surgery is the most "difficult" to perform of the three open heart surgeries that she will, G-d willing, have. 

Please have her in your thoughts and prayers.

Watermarks?

Why the watermarks?

Unfortunately there are terrible people in this world that use these pictures of sick babies and children to run scams. We've been warned repeatedly to make sure our pictures are watermarked. 

A woman that I have been in touch with just had this happen to pictures of her heart warrior son. 

G'morning baby!

Yesterday was a hard day for me.  After the c-section, I was put in a different maternity ward, due to lack of space. I am not on the same floor as the NICU. The nurse I had, was pretty horrible. She refused to allow me to get out of bed, see the baby, try to pump my milk, eat, or remove my catheter. She also couldn't do a single thing right, and took over an hour to give me any pain killers that I asked for. 

Thankfully, I had a wonderful night nurse, who disagreed with everything the previous nurse had done. So, today, I'm up and about! Unfortunately, I needed a CT scan because they thought I had a collapsed lung. The medication that they administered makes my milk unusable for 24 hours. In the end, my lungs are fine and I just have a strained muscle under my ribs. 

They are trying to find me room in the right ward today. 

I got to see Tehilla this morning, for the first time since the birth. It's incredible the way you can fall so deeply in love in a matter of seconds. She's so sweet and has the cutest little thighs. I am waiting for the doctors to do their rounds soon to get an update.

Last night, she had a lot of trouble breathing and was put on a ventilator. Her oxygen saturation level was pretty low as well. This is either due to her HLHS or because of the medication they gave her to keep the hole between both sides of her heart open.

Here are some pictures:

Tehilla is here!

Tehilla was born this morning at 10:33am. So far she is doing exactly what they want her to do. I'll give a more detailed update once I have more information.