Sleepless Shabbat

Tehilla developed a fever 40 min before Shabbat. I called the doctor on call and explained the situation. He told me to call him if it got worse. Tehilla spent the entire Shabbat shrieking, not sleeping, pulling on her ears, clawing at her head, not eating a lot, begging to nurse constantly. 

So as soon as Shabbat was out we called and went to see the on call doctor. He looked her over and said that he's suprised to say that her ears are clear. Either it's another virus or its teething. To which I went on a whole vent about teething...

Ron and I are both very run down, from lack of sleep and are not feeling great, so maybe it is viral...

At least it does not seem heart related. Thank G-d.

I'm open to any heart safe suggestion to cure teething and lack of sleep.

Ear Infection

Tehilla woke up this morning with a fever. A trip to the doctor and we finally found that ear infection that has been driving us all crazy. Not that I'm happy that she has an ear infection. I'm just happy that she has something that we can fix.

Less Tears

Tehilla's tummy finally seems to be on the mend. Chamsah Chamsah Chamsah. Ptu ptu ptu. Bli Ayin Harah. (If you didn't follow that, don't worry about it. Just warding off the evil eye, is all.)  It seems the night (I honestly have lost track of time, due to the lack of sleep.) that Tehilla cried and was finally comforted by a bottle, was due to a growth spurt. She has chunked up and grew.  Next week, I plan on taking her to the well-baby clinic for measurements and immunizations.

Her teething is still- well, like this:

 

She really is in so much pain. We have been giving her Tylenol more generously and make sure to give her some before bed.  It has helped everyone get more sleep. I actually got 5 consecutive hours of sleep, last night.  During the day, she has been napping better and been more playful. 

We are having a lot more moments, like this:

Tehilla can mostly sit up on her own. We keep a cushion around her, just in case. She also can roll and turn herself very well. Within a minute, she has managed to get herself across the carpet and grab that "special thing" that her siblings don't want her to have.

I Hate Teeth

Tehilla has been miserable for days. She hasn't napped and wanted to be held non-stop. At night she has spent hours crying or repeatedly waking up. Last night, was extremely hard. She woke up at 12:something and screamed, shrieked, took a deep breath and screamed some more until 5:oh-my-lord. It was awful. As soon as Shabbat was over, I called our doctor and because of her heart, he wanted to check her tonight.

Dear Tehilla,

My dear, sweet love, I hate your teeth. They hurt you tremendously.  That I'm sure. You have a very high pain threshold. So for you to scream for hours, I am convinced that it is unbareably awful. When your pearly whites decide to show their faces, let me make this clear. You are never to get a cavity. Don't even consider braces. Together, we have put in hours of pain, tears and screams. You are to have record breaking perfect teeth.

G'night all. Here's to a pain-free night.

Tummies and Prayers

Last night was better. Tehilla slept until 1:30 am and woke up to nurse. I didn't turn her down because she is not feeling well. After nursing she went back to sleep until the morning. She did not let me put her down today and hasn't taken a single nap. So now we are both cranky messes.

Tehilla did learn a new "trick" today. She can now hold her sippy cup by herself.

On Monday, our doctors made it clear to me that Tehilla cannot progress to her next surgery unless she has substantial growth in her pulmonary arteries. As of now, she has had very little growth in the past two months since her BT shunt surgery.

I'd like to ask, if you are praying for Tehilla, please specifically pray for her pulmonary arteries to grow, so Tehilla can have her Glenn surgery. Tehilla bat Shoshana.

Tummy Troubles Ongoing

This is the face of a little lady who cried and screamed without a break between 1:15am and 4:50am. Her stomach is hurting her again.  Not that it ever completely stopped, but she was doing better.  So, back to prune juice and the powdered medicine hidden in her food.

Tehilla also said "hi" twice today. What's really cute, is that she says "hi" in the same enthusiastic tone that everyone says "hi" to her. "Hi!!!!"

Tummy and Heart Update

For the most part, Tehilla's tummy troubles are better. She isn't completely back to normal and still gets pain. During this time, she has refused a bottle. The past two nights, she was up through the night. Last night, some time around 3:15, I pushed her to take her bottle and she drank 60cc and then slept well the rest of the night. So now I'm convinced that she is hungry and just completely out of sorts. All I'm sure of is that I vaguely remember a concept called sleep and I would do anything for some.

We had our follow up appointment with Dr. Golander. Her echo showed that her heart functionality has improved. Her pulmonary arteries still have not grown hardly anything.  So...we are just hanging out and hoping that they do grow, so she can have her much needed Glenn surgery.