We went for a followup appointment tonight with our pediatric
cardiologist, Professor Rein. All looked the same, and good,
considering the heart defect. There is one thing that came up. They
are monitoring the development of the heart. One of the criteria for
the baby to be able to have the heart surgeries, with as few
complications as possible, is the size of the aorta.
Unfortunately, since our last appointment, 6 weeks ago, the aorta hasn't grown and is "incredibly small". This isn't unexpected given the HLHS, but there is a minimum that they are looking for, to insure better results. We aren't at that minimum.
We will be seeing Professor Rein again in 6 weeks and meeting with our surgeon in the next few weeks.
Unfortunately, since our last appointment, 6 weeks ago, the aorta hasn't grown and is "incredibly small". This isn't unexpected given the HLHS, but there is a minimum that they are looking for, to insure better results. We aren't at that minimum.
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