Sleeping Heart

Today they removed many of Tehilla's tubes and wires from her chest. They decided to wait until tomorrow morning to take her off the ventilator, in part because there was a small incident where she stopped breathing while changing one of her medications. They stabilized her immediately and she is fine.

They consider that she is well over the worst of it. Still, it's a hard fight that she is fighting. Please continue to have her in your tefillot. 

Here, is a picture of her sleeping. The blanket that she is sleeping with is one that was sent to us in our care package from Sisters By Heart (sisters-by-heart.org) They are an organization made up of "Heart Mamas" who have children with HLHS. They provide newly diagnosed families with support and information. They also send out a care package completely free of charge, filled with things that the families will need while their baby is in the NICU and PICU. It has special pacifiers that help babies retain their sucking ability while unable to nurse, bottles, swaddling blankets for the baby, leg warmers, a knit hat, pen and notepad, toys for our other kids, a heart ring for me, deck of cards for Ron, Purell, hand moisturizer, a "hands-off" sign for the stroller, and this blanket.

This blanket was made by another mother of a little boy named Ryan, who had HLHS and unfortunately did not make it.