Great and Not So Great Appointment

Today, Tehilla had an appointment with her cardiologist, Dr. Golander. She behaved very well for the echo, thanks to some YouTube videos.

Dr. Golander was very pleasantly surprised to see that her heart function has greatly improved! Unfortunately, her blood pressure is still very high. So, even though her heart function has improved, we can't reduce any medications, because her blood pressure is not under control.

Dr. Golander contacted a pediatric nephrologist for a recommendation for a blood pressure medication. He raised the dosage of her Enalapril and has added a new medication: Amlodipine. It has some side effects that we need to keep a look out for. Unfortunately, none of these medications come without some side effects.

I asked Dr. Golander what kind of time frame we are looking at for the Fontan surgery. Usually the Fontan is done around age 3. He said that we are looking at another year to year and a half. But she most certainly needs to have her blood pressure under control and not be on so many medications, to be a good candidate for the surgery.

For those that keep Tehilla in their prayers, please specifically pray that we get her blood pressure under control and are able to slowly wean off these medications.

We see Dr. Golander again in 3 months.