On Monday, I had my appointment with our surgeon, Dr. Erez. Before that, I met with a geneticist who plans on collecting DNA and data from the baby, to research HLHS.
Dr. Erez is really an incredible doctor. I feel so blessed
that Hashem has provided us with doctors that are world renown, as well
as completely devoted to their patients and the families. The
appointment went incredibly well, relieving me of certain worries. The
c-secion will be scheduled for the week of September 29th, although due
to an "obtuse" secretary, we still don't have the exact date yet.
One of the things that Dr. Erez said was that the baby's aorta
size was not a problem. In fact, his words were "it's great! 3 mm is
large. 1 mm would be a problem, but we should be just fine." Sigh of
As well, he was very thorough in making sure that I understood
the condition, the surgeries, the possible outcomes and how it would
impact on every member of our family. He was very happy to see that I
was well versed and didn't need any explanation. I explained to him
that our pediatric cardiologist, Professor Rein, had been very
straightforward in explaining to us that the baby had a 45% chance of
living over the age of 5 and that with each (G-d willing) successful
surgery, our percentage went up.
With this he corrected me and said, "45? Really, that's what
Professor Rein said? No...that's too low. I would say in the 60s,
closer even to 70%." Needless to say, I left the appointment with a big
smile on my face.
Our only foreseeable problem would be, if something happens
and I need to deliver early. Dr. Erez will be out of the country for
the next two weeks and he is the only surgeon in Jerusalem that performs
the Norwood surgery. We would have to go to Shneider's Children's
Hospital in Petach Tikvah.
So, I'm going on bedrest for week 38, drinking a lot, keeping my legs together, and doing what I can to stick to the plan.