Tuesday, October 25, 2016

The Past Ten Days and Tomorrow

When you spend your early summer preparing for your little daughter's heart surgery, you block out any dreams or hopes for what the future holds. You live life in the present and just cherish the moments that your little one is with you. That is how we have been living since Tehilla was born and with every surgery or catheter, that mindset is reaffirmed.

When this holiday season crept around, it felt like a surprise. We have had our minds on so many things concerning Tehilla, that we honestly weren't paying much attention to the calendar. And that made it all the more powerful.

This past Rosh Hashana and Yom Kippur, while I prayed, I found time to thank G-d for all the time that He has given us with Tehilla. I treasured having my family all together for these past holidays and found myself thanking G-d repeatedly for the blessings that we have received from Him. The way the calendar fell out this year, made every other day a holiday or Shabbat and while it felt like a cooking and cleaning marathon, it just left us with more opportunity to realize how grateful we are for the simple things: 3 healthy children at home, celebrating with us.

We were beyond blessed to be able to spend so much of Sukkot with so much family. One of my brothers flew in from NY and for Shabbat Sukkot we hosted Ron's entire extended family: 25 people all together! 

We spent Chol Hamoad at the beach and the zoo and Tehilla enjoyed herself immensely.  

Thursday, we spent relaxing at home and getting ready to celebrate Tehilla's 3rd birthday! We had the party on Friday and the entire family over on Shabbat. It was a very busy weekend and Tehilla completely enjoyed her Hello Kitty party!

 Tomorrow is Tehilla's cardiology appointment with Dr. Golander. We will be receiving the long awaited results from the Holter monitor and find out what our course of action is. Please pray and have Tehilla in your thoughts. I will keep the blog updated as the day carries on.

Sunday, October 16, 2016


There has been no time to blog or catch our breath as we jump from holiday to Shabbat repeatedly but we are all doing well and loving the family time that we have.

We are feeling an overwhelming sense of gratitude and blessing as we are able to spend these holidays together and with family and friends.

Here is a picture of our Sukkah which the kids completely decorated. The festive look just really embodies how grateful we are to be a whole family having survived so much. Thank G-d!

Chag Sameach to all our blog family!

Tuesday, October 11, 2016

Yom Kippur

Tehilla completed her Holter monitor on Friday and we returned the device. We meet with our cardiologist in two weeks to receive the results and followup and, depending on the findings, form a plan of action.

So, what has Tehilla been up to lately.  Well, ya know, just ordinary amounts of mass destruction by a three year old.

Tonight is Yom Kippur. May this year bring us all joy and calmness, health and balance, and lots of time to enjoy our family and friends.

Thursday, October 6, 2016

Holter Started

Another hospital appointment; another hour wasted in beaurocracy. But....we finally were able to start the Holter monitor.

Tehilla has been calm but quiet the entire time we have been here. She has negotiated many treats out of me.

These next 24 hours, her heart rate is being recorded to determine if she is stable or in need of a pacemaker. Please pray for the best possible outcome.

Wednesday, October 5, 2016

Holter Monitor Tomorrow

It took 3 nights of Tehilla not sleeping for us to figure out what was going on. In the crazy hours of the nights, we begged and pleaded for Tehilla to sleep. We wondered if something was wrong, even got out the thermometer and pulse ox. Everything was normal- good even!

What was it? Sleep child!

And then...we realized our miraculous 3 year old was JUST afraid of the dark. How perfectly regular and age appropriate! Exhausting but the best we could ask for!

Thank You, G-d! Thank You for normal!

Tomorrow is Tehilla's Holter Monitor. We will be in the hospital in the morning and then home for 24 hours to measure her heart rate.

Pray- pray for improved results!

Sunday, October 2, 2016

Shana Tova

Shana Tova to all of our wonderful and supportive blog family. May this year bring you all happiness, health, strength, wisdom and clarity! May this year be filled with blessings and joyous occasions.

Tehilla turned 3 years old yesterday. We were blessed this past year with 365 days of miracles. May this year bring us another 365 days of miracles. May it bring our family healing and time to spend together. May each of our 3 children continue to blossom in their own unique and beautiful self.

Sending love to all of you!

Tuesday, September 27, 2016

Croup Fun

Last night, as we tucked ourselves into our beds, we heard the distinct and familiar sound of a barking croup cough. We scrambled to Tehilla's room and found her sitting up in bed.

"Hi, Momma!"
"Hi, Lu."
"I'm coughing. A lot."
"Yes, I hear you coughing."
"I'm sick...and sweet."

We gave her a dose of ventolin to open her airways and opened her window to let the cold air in and help her breath.

We prepared for a rough night, but she actually slept fine after that. This morning, she woke up barking again, so we went to the doctor and unfortunately got a doctor we don't love. He heard her strydor but felt she was okay and agreed with how we handled it. Only a little bit of advocating was necessary as we discussed what to do if she was struggling to breath, which came down to running to the ER for oxygen and steroids.

She seems to be doing well, so I don't think we will end up with anything like that.

Tehilla very nicely asked the doctor for a sticker. I was impressed with that as it seems she has really gotten over the trauma of her surgery.

Other than that, Tehilla has been methodically coloring our possessions and the members of our family pink. She enjoys sneaking up on us and quickly scribbling on our limbs. We have not located her stash of markers.