Wednesday, December 20, 2017
It has actually been a month of everyone being sick, around the clock. As soon as one kid feels better, another is running a fever or finding a perfect opportunity to throw up on one of us. And then that day that everyone felt just right- that was when Chanukah vacation started.
When filling amoxicillin for four of us and augmentin for the fifth, the pharmacist sympathetically smiled and said, "Tough start to winter, huh?"
I know, I know- count your blessings. And I do. I'm just so tired. So so tired.
After that scare that Tehilla gave us, she kept improving and her oxygen saturation stayed exactly where it was supposed to. But then she got a cough that got worse and worse and worse. We tried a lot of different things to help relieve the cough, but nothing seemed to help. After hearing some stryder in her cough, I gave her one of Tzviel's puffers which immediately stopped the coughing until the morning. Two puffs and it was gone again.
Then her ear started hurting again. We went to see our doctor, who agreed that the puffer was the right move and checked her thoroughly. Turns out it was pain caused from pressure in her ear canal from a new cold starting. Joy to the *enter expletive* world.
Needless to say, Chanukah was celebrated with joy all eight nights and spent with family and friends. Tehilla is feeling well enough to sing every Chanukah song she knows from school over and over. And over and over.
With all the complaining aside, we are very blessed to have spent this wonderful holiday together. Every holiday that goes by, I'm reminded of what a true miracle it is that we are together and celebrating as a family. These moments can't be taken for granted and they are treasures that we all hold onto dearly.
Monday, December 11, 2017
We are settling in for a night at home. Tehilla is clearly not feeling well and seems off. She started the Augmentin right away. And went to bed at her usual bedtime.
She woke up a few hours later feeling very unwell and then very hungry for pasta. She let me check her oxygen levels. She was back up to 83-85, so we are very happy.
She has insisted on sleeping in our bed. We will see how tonight goes but things are looking good and should allow us to stay home and out of the ER.
Sunday, December 10, 2017
Sunday, December 3, 2017
For those that were part of the blog family three years ago- you know that it wasn't just that the odds were against us. It wasn't just that open heart surgery has a challenging success rate. It was that she wasn't meant to survive.
Those were the days when our doctors eyes were brimmed with tears. Those were the days when we heard the crappiest words you can hear, medically speaking: "out of options" "no chance of survival"...
And those were the days that we turned to you. We had absolutely nothing left we could do and nowhere to turn. And you embraced us in the warmest hug a family could ever give. You cracked the heavens open with your prayers. You filled charity boxes. You baked challah en mass.
So, yes, I made up a word. Miracleversary. It's a great word. Tomorrow marks the day that a complete miracle happened here. "Nes Gadol Haya Poh". Today marks the day that you all showed up when you were asked to. You all stood by our side and loved the heck out of us and our daughter.
I love you, blog family.
Friday, November 24, 2017
There is always one or two interactions that always stay with me. This time it was Chaya in Manchester and Shira in Leeds.
After speaking, Chaya came up to me and let me know that as a med student, how much my words meant to her, that our story would always stay with her and she would never abuse her power as a doctor, like Dr. Big Nose.
Then there was Shira who is studying to be a medical clown and loved hearing about our interactions with medical clowns and how bringing a smile to a family stuck in the hospital can give the perfect relief to a hard situation and actually help recovery.
I'm brought in to speak to students to share our family's journey and inspire them. But it's situations like these that actually bring hope to me. Thank you, Genesis, for the wonderful experiences and all the good that you do!
And now, blog family, it's time to go home and spend Shabbat snuggling with my family!
Wednesday, November 22, 2017
I arrived in London on Sunday night. I've been flown in by a program called Genesis. They provide programming for university students in England.
Monday, I was sent to Nottingham, where I gave my first speech. Yesterday, I went to Bristol.
I speak about our family's journey and what we have gone through. I also talk a lot about you, blog family, and all that you have done to support us and help us through out heart journey.
It's unusual to spend so much time reflecting on our life but it only reminds me of how truly blessed we are.
Today, I will be speaking to two different groups in Manchester.
Sunday, November 19, 2017
So after being home for one week, I am now waiting to board my flight to London. I'll be all over the country during the next few days, speaking about our family's journey.
Tehilla's reaction when I said I was leaving again, "It was amazing when you were gone. It'll be great!" Thanks, kid. I'll miss you too.
See you all on the British side.