Friday, February 28, 2014
Tuesday, February 25, 2014
She is rolling on her side and can wiggle herself all around and off of her playmat. She is reaching for everything and laughs and smiles constantly. And she babbles all the time. She still hates baby cereal and has hated sweet potatoes, zuchinni and carrots. She just does not like food yet. I'm going to try some fruits and see if I get anywhere with her.
Our doctor wants her to go for a blood test to check her iron level to see if it's even necessary for her to get iron drops. If she doesn't need any additional iron, then problem solved and we won't have to worry about the iron drops.
But now Tehilla is in the care of a doctor:
who sympathetically listened to our story about the pediatrician,
who laughingly agreed that our nicknaming the pediatrician "Dr. Stupid Face", was appropriate,
who dutifully accepted the 60+ pages of photocopied medical papers to study,
who accepted many hours of research he will have to do to care for Tehilla,
who thoroughly examined Tehilla without forgetting that she is not just a heart baby, but also a baby,
who reveled in Tehilla's development and achievement of milestones,
and who thanked G-d that she is doing as well as she is.
I could not be happier with this move.
Our cardiologist appointment has been reset for next week.
Sunday, February 23, 2014
Thursday, February 20, 2014
Later that evening, we went to see our pediatrician. There was an incident and serious case of unprofessional-ism on his part. We will be switching doctors. This really is not what we needed with all of the stress of interstage, and a worrisome night in the ER. We will be switching Tehilla to our incredible family doctor that the rest of us see. It's the right move for Tehilla, because we have an incredible relationship with him and feel that he is the right person to help us on our journey.
Wednesday, February 19, 2014
Tehilla seems fine. They are waiting for the senior doctor to come in and look her over. I'm trying to get ahold of our cardiac nurse, so our cardiologist can take a look at her.
Tehilla has found a new hobby. Breaking out of her swaddle blanket and pulling on her pulse ox just enough so it does not read correctly and shows her heart rate through the roof. This sounds all of the alarms. She did this a few times last night. The nurse would come running and ask me what is going on. I would manage to lift my head off my pillow and say, "It's not connected. Look at her oxygen level, which would be in the 90s. She isn't capable of those numbers." So they would fix her pulse ox and I'd force her back into her swaddle blanket.
It's been a fun night.
Tuesday, February 18, 2014
Wednesday, February 12, 2014
She was supposed to have an appointment today with our cardiologist, as well as an echo cardiogram. Our hospital, Hadassah Ein Kerem, currently has a strike due to a severe financial downfall caused by many different factors. I hope for everyone involved the situation gets resolved quickly, staff gets paid, and appointments get back on track. Hopefully her appointment will be rescheduled soon.
The past week, Tehilla has been doing better, and handling pretty well. She is still not the biggest fan of her baby cereal. I, also, started her on sweet potatoes and will try her on some other vegetables this week. Tehilla is incredibly talkative. She has whole conversations in baby babble with our family and has even addressed Ron in an exact imitation of the way he talks to her (with high pitched tones). I have tried with all my might to capture it on video, but Tehilla is completely camera shy. That and then she tries to eat the phone. She has started to roll to her side and when left on her play mat, she wriggles and moves, until she is facing in the opposite direction. Thank G-d, she has been making her milestones nicely.
Monday, February 10, 2014
Thank you to those of you that sent us pictures. It was touching to see. Here is a collage of everyone.
Friday, February 7, 2014
Thursday, February 6, 2014
Tehilla is going for an appointment with our cardiologist and an echo next week. So, hopefully we will have a more concrete answer after that.