Thursday, November 24, 2016

New Normals for Half a Heart

And yet, another two weeks have gone by without an update. So sorry, blog family! But at least there is a lot to tell!

First, I have been asked several time to post a video of Tehilla, so you can all get a glimpse of her personality. That is much more difficult than it sounds, as she is quite a spunky person, but refuses to allow me to record her. The other day, she insisted on bringing an umbrella to school, despite there not being any rain and burst into a funny version of "Rain Rain Go Away" that she made up on the spot. By the time that I reached for my phone and started recording, it was over and she refused to do it again.

But I searched in my phone and found a video that I took around the holidays. So, here it is (cannot be seen on a phone):

Tehilla had a (very belated) birthday party at school. I made her another Hello Kitty cake and she had a blast with her friends. She came home shrieking the birthday songs the rest of the afternoon, but clearly enjoyed herself. Her teacher sent me over 30 pictures, but I can't share them, because they have other children in them. Here are two, so that you can get a glimpse.

Her teacher and I have had some very nice conversations about how much Tehilla has come along and how she has had a surge of maturity, development, ability and especially, energy. They see her participating more in the activities and asserting herself better. It's an amazing thing to be having these conversations and knowing that this little heart warrior has come so far.

Here is a picture that they sent me of her completely loving when the zoo extra-activity brought chinchillas to school. They let her hold one and she was incredibly happy. (Much more than when they brought snakes or crickets in other weeks!) 

 And, here she is being the spunky, funny little toddler that she is, demanding to go to sleep with a winter hat on.


 We are all learning to adjust to our new normal. In the past, a stuffy nose would have desaturated her oxygen too much and landed her in the hospital. Now, we can just pull out the humidifier and settle in for a night at home. Tehilla had a bad cough for a few days. Her cough would turn her purple, but instantly her color would go right back. Her teacher even admitted to pulling out the pulse ox, from Tehilla's backpack, and checking her a few times. And while, her numbers would go low, the teacher would check again a few minutes later and they were right back up. (Have I mentioned enough how much I adore Tehilla's teachers?)

Some vaporub on her feet and amazingly enough- she is fine. You all might be reading this and rolling your eyes, but I'm not sure you realize what an absolute miracle this is for her. We are blessed beyond measure each and every day to have calmness and new levels of stability.

I have some other big news to share, but I will make a separate blog post a little later.


  1. Thank you for the video, it does "my" heart good to see this princess with a heart.

  2. So much wonderful news - and that video is totally full of wisdom, isn't it?
    מפי עוללים ויונקים...
    "... not a person, not yet." Love you guys!