Tuesday, May 21, 2013

Just Between Us...

This blog is a little secret, for now.  We'll see if I ever get a chance to open it to the public.  It's about a little girl, named Tehilla.  She's still a fetus right now.  That's why this has to be secret. 

Right now, I'm 20 weeks pregnant with her.  I can feel her kicks and I've seen her little heart beat on the ultrasounds.  Her heart is what has gotten me here in the first place.  It's quite unique, and special, I imagine we'll tell her when she's older.  Tehilla has been diagnosed with Hypoplastic Left Heart Syndrome (HLHS), a rare and severe heart defect.  We just had that diagnosis confirmed yesterday.  My heart broke, as the doctor described a very sad and scary future for her. 

We've been given an unimaginable burden to decide whether to terminate this pregnancy.  We are so overwhelmed with this decision.  We have an appointment with a genetic counselor on Tuesday, to help us understand the big question of "quality of life."

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