I just updated the Heart Mamas group, so I will just copy and paste what I wrote there. In short: good day with good doctors. It's amazing the difference in medical advice when you have a good doctor.
an update, for those that have been keeping up with us: We went for 2
appointments yesterday. One was to a genetic counselor and one was for a
second opinion for HLHS found in the baby. I am now 21 weeks.
appointment with the genetic counselor was really nice. They are
sending us for an amniocentesis to rule out any other genetic problems
that could effect the outcome of this baby. We will get all of the
results in about 3 weeks.
The second appointment with the pediatric
cardiologist was incredible. We saw Professor Rein, the head of
pediatric cardiology at Hadassah Ein Kerem. He was such a wonderful
doctor, warm, compassionate, patient and positive. He never once
mentioned termination or quality of life. He felt very positive about
going through with the surgeries.
However, the imaging wasn't clear but it looked like there was an
obstruction in the PFO. In 3-4 weeks time, I am going to see him in the
hospital and they will do another echo to see if there are fluids
passing through the PFO or if there is really an obstruction. If there
is an obstruction, he explained to us that there is little that can be
done and we wouldn't be able to make it to the surgeries. However, if
this isn't an obstruction, he felt that there was no reason not to go
ahead with surgeries and felt that we should expect a good outcome. He
also told us about Dr. Erez, (I heard about him from a number of you)
that moved from Texas and is considered to be an incredible surgeon in
dealing with HLHS. So, while we're worried about this obstruction, it
was a very positive appointment. It was very informative and he stayed
and answered every single question that we had. He was truly wonderful.
Keep us in your prayers!