Tuesday, January 21, 2014

Just a smidge more...

Thank G-d (over and over again), Tehilla recovered nicely from that virus.  Those onions helped her immensely.  At one point, she was very weak and not even crying when it was time to eat. I had to "force feed" her a lot.  But she regained her strength and is back to being a super happy smiley baby with a side of teething.

Yesterday, I took her to the well-baby clinic to get weighed.  She is at 4.945!  Just a smidge off.  The scale I weighed her on, is the one that last time around I thought was off, so who knows, she could be past 5kg already.

Sunday, we go in for the heart catheter. They will be checking for the pressures inside her heart.  This will indicate whether she is ready for her Glenn surgery or not.


Thursday, January 16, 2014

Respect the Onions

Last night started out very badly. Shortly after I posted the last update, Tehilla's cough got even worse and her fever returned. She couldn't keep anything down and even her diapers were not very wet.  I gave up on talking to the pediatrician and called our cardiac nurse. She called Dr. Erez, Tehilla's surgeon, and updated him.  The nurse and I discussed whether she should go to the ER.  There was a concern whether she had contracted RSV and needed oxygen.

I got off the phone and came to the realization, amidst sleep deprived tears, that there was no point in us going to the ER.  Every time that we have gone to the ER, they have not done a single thing for her.  While her cough was horrible and her lips were even purple, I did not think she needed oxygen.  I have more ways to calm her and help her at home.  If I went to the ER, I would have spent another sleepless night with a screaming, unhappy baby, who would have to endure pointless blood tests and I would spend the entire time advocating for her. The ER poses too serious of a threat for her.  Last time we went, she caught that stomach bug.

So instead, I gave her an inhalation treatment.  I, then gave her only 30cc of formula and gave her Gaviscon right away.  Gaviscon was the medication that they prescribed to us for her reflux.  It acts as a seal for the food in the stomach.  We haven't been using it on her, because she hated the taste of it and her reflux had eased up a little bit. I then moved her swing into our room, dimmed the lights and she calmed somewhat and did not throw up her food. Her cough was still very out of control.

I told the nurse all this and she agreed that it was a better plan than going to the ER. Of course, there was the precaution of if she got any worse, to go to the ER and give her a call.

My friend, Netanya, made a suggestion on the previous update: to cut an onion in half and put it next to her crib.  Under normal circumstances, I would have dismissed this immediately.  I mean, an onion, really?  But last night, I was very desperate.  I was adamant to keep Tehilla out of the ER.  So, we cut an onion in half and put it on the swing with Tehilla.

It worked.  Like, it really really worked.  Within a few minutes, her cough wasn't as strong.  We, literally, sat there watching her cough progressively stop.  It took about 30 minutes, but she stopped coughing almost entirely. And when she did cough, it would dispel quickly and she could catch her breath. And then she slept for the next hour.  I woke her to give her another 30cc of formula and held her with the onion next to me.  She went back to sleep.  We got to relax for some time and then I nursed her about half of a feeding and gave her more Gaviscon.  She slept (and so did we!) for another 4.5 hours. I put her to sleep in her stroller so she could sleep very upright. She woke up in middle of the night, and I nursed her, gave her Gaviscon.  She was very irritable and started crying. So I took her and started walking her in our living room. She started having coughing fits again.  I was so tired, that it took me some time to realize- the onion!  So, I quickly put her into her stroller, and put the onion on the stroller tray.  She stopped coughing.  I walked her around in the stroller and she finally calmed and went back to sleep.

This morning, I have kept the onion (about midday, I cut her a new onion) next to her.  She has barely coughed and has been keeping her food down nicely, with the help of the Gaviscon. So, she is safely on the mend, at home and we are all getting some more sleep.

Honestly...onions, who knew?!?

Wednesday, January 15, 2014

Sick Again and RSV shot

Poor Tehilla is not only teething but has a terrible cough that is in her chest. It's accompanied by a cold and last night she had a fever. She gets coughing fits and can't catch her breath. She has thrown up every meal. Now I'm making sure to feed her small amounts but more frequently. We went to see the pediatrician last night. He started her on saline inhalation treatments twice a day. He told me to update him today. 

Last night no one got any sleep. Tehilla screamed and cried the entire night. And just when I thought that we got her to sleep, she would wake up again. There was one break from 3:15-4:25 when Ron managed to get her to sleep. It was horrific. 

Despite all that, Tehilla did not have a fever this morning and after consulting the pediatrician, we took her for her RSV shot this morning. She was weighed and is now at 4.820kg. 

I may have to take Tehilla back to see the pediatrician tonight. 

I miss sleep. 


Monday, January 13, 2014

Teething and Immunizations

Tehilla has started teething, and how... If I thought I wasn't getting sleep before, well... let's just say it's bad.  I've been giving her the topical gum ointment and at times, Tylenol. I've also been nursing her somewhat on demand to comfort her.

Today, we went to the well-baby clinic to give her the next dose of the HPV vaccinations and the Rota drops. I weighed her, even though it has only been 4 days, so that I don't have to go back.  She went up to 4.785kg.  Little by little...

While undressing her, Tehilla turned blue.  The nurse became hysterical, until I told her to calm down and that it was probably because the window was open and Tehilla was naked. She closed the window, I weighed Tehilla, got her dressed and her color quickly changed to purple.  It took about 7 minutes for her color to change completely back to normal. Now, she's back to her pretty pinky self.

Friday, January 10, 2014

Almost there

Yesterday, I took Tehilla to be weighed. She is now 4.735kg and 55cm long. I had a feeling last week, and now I know, that last week's weighing was inaccurate. She is almost at her 5kg goal for her Glenn surgery!

This week, I moved Tehilla into her crib in her room. It's directly off of our room, so she maybe moved 10 feet away. Regardless, it has not been easy for me and I have not slept much. She, on the other hand, has been sleeping just fine.

Her heart catheter is about two weeks away. We've started to tell our two other kids that I will be away for two nights/3 days.  I'm starting to prepare myself mentally, as well, for being back at the hospital and seeing her in that state again.

Well, after all of the responses I got from the blog and Facebook, Picture #8 won.  I'll go to have it printed and framed, next week.

Shabbat Shalom to everyone!


Wednesday, January 8, 2014

Photoshoot

After repeatedly trying to schedule a photoshoot with two different photographers, I was very disappointed. I really wanted to get a beautiful shot of Tehilla that I could print and frame for our cardiologist and for our surgeon as a thank you.

So, this morning, I had a do-it-yourself moment and decided to do our own photoshoot. I'm pretty proud of myself.

But now, I need your help.  I need to decide which picture to have printed.  So, please, comment below, on which picture you think I should use.

And yes, Family, if you would like me to have one of these printed for you, I will.


#1





 #2






#3






#4





#5






#6






#7






#8






#9