I've got great but awful news. Absolutely great, but "oh my G-d, not this again" news.
We are going to the step-down unit tomorrow morning. We are leaving the PICU and moving to floor 4 Post Surgery ward.
It's great, because it's a huge step in recovery and in getting home eventually. It's G-d awful because it is the most awful place to be. We will be put in a room with 8 other families that are recovering from all different kinds of surgery. It is noisy, extremely not private and the nurses are rougher.
It's kind of like trying to recover from surgery while out-running an alligator.
So...we have a lot of experience and what has worked is finding other areas to go to in the hospital that are quiet and private. Tehilla will be allowed to move and I will put her in the stroller and go for walks.
We will survive this. There are no guarantees of how long we will be on Floor 4 because Tehilla still has one chest tube in. But we won't be in that big room for the whole time. At some point we will get a regular hospital room on that floor.
Tomorrow morning. Here we go...