Tuesday, December 9, 2014

Not Going Home Tonight

Tehilla is scheduled for her sedated echo at 1:00 pm tomorrow.  She will have to fast from 7:00 am and stop drinking water from 11:00 am. They will reinsert an IV.

Dr. Erez, our surgeon, came to see us. And our cardiologist just came to talk to us again.  He explained that at the time of Tehilla's surgery, her heart function was great. But she was sedated. Now, she's awake and eating and drinking and crawling and playing.  Now her heart is actually working and we see the real functionality.  And it's not good.

The Glenn was completely successful.  We see that by how great her saturations are (78-83) and her head is not swollen. It worked. (Yay!!!) (Thank G-d!!!)

They must see her pulmonary arteries to make sure that everything is okay. They have no reason to believe that anything is wrong. But they can't send us home until they are sure.

Now, they have to get her heart functionality better. We are strictly talking medications. The way to do that is to lower the blood pressure and lower the resistance. So, we will be adjusting medications and if need be adding medications. So far, it's what I wrote before: Enalapril is going up to the highest possible dose for her weight and we are restarting Digoxin.

So, we are here for another night. We are top priority to get a room.  But I guess that fright put things in perspective.  Thank G-d, her Glenn was successful and thank G-d, we can manage this problem with medications. 

Yes, it's another night here, but you know what, in the grand scheme of things: less sleep and a gross shower really are not that big a deal.

Our miracle baby is great. That's really all I care about right now.


  1. Hang in there Shoshana, we are many of us there with you all, with prayers and comments and emails. But especially prayers.
    More miracles will be happening please G-d, for Tehilla.
    Amen and amen.

  2. My 6-1/2-year-old son, Yirmi, keeps asking about Tehilla & saying how cute she is. He asks how she's doing every morning and wants to see pictures of her, especially the ones in which she's smiling :-) Wishing you lots of good news!

  3. The L-rd is still working...praying in Oklahoma,USA.

  4. I've even had a friend who is not on Facebook asking me about "the little baby, you know, the Rabbi's granddaughter." Tehilla's story and miracle have spread far and wide. Much love.